Dementia is one of the most widespread diseases in the world, with numerous and varied consequences for the individual and his or her family, and for society at large. In addition to impaired cognitive functions such as memory, spatial orientation, language skills and thinking capacity, dementia can also cause behavioural and psychological symptoms (BPSD). These can express themselves as, for example, anxiety, agitation, aggressiveness, wandering, depression or hallucinations. BPSD is one of the most common factors behind an individual requiring special housing and is also a common reason for the prescription of medication and for polypharmacy. The objective of the BPSD registry is to ensure the quality of nursing care for people with dementia and to achieve nationwide equality in the care and treatment of this patient category. The registry has a clear structure and is based on charting the frequency and severity of BPSD, identifying potential causes of BPSD, recording pharmaceuticals, providing suggestions for evidence-based nursing interventions to reduce the prevalence of BPSD, and evaluating suggested interventions.
There are currently approximately 150,000 individuals with dementia in Sweden. Many of these have not been diagnosed. About 90 percent of these people will suffer from BPSD during the course of the illness. The farther the condition has progressed, the higher the prevalence of BPSD. Consequently, the registry is primarily used by nursing homes and other special housing facilities, but also to some extent by home care and local dementia care teams.
Since the registry was started, 27,911 individuals have been registered, and there have been a total of 68,618 registrations (12 May 2015).
There are affiliated units, both private and public care providers, in 284 municipalities. It is difficult to set a figure for coverage rate on the patient level, as many people with dementia have not been diagnosed.
Note: Variable lists are updated on a regular basis and should therefore be seen as preliminary. For the latest version, please contact the registry.
Category: Other areas
Certification level: 3
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