The aim of the National Quality Registry for Breast Cancer is to:
The registry contains data on preoperative diagnostics, tumour data, type of surgery, waiting times in diagnosis and treatment, long-term and short-term complications and recurrence rate, and patient satisfaction (including cosmetic).
The primary results measured are survival, complication and recurrence rate, and the number of satisfied patients.
The registry provides the opportunity for comparisons and feedback on national, regional and local levels on diagnosis, treatment patterns and outcomes. The registry also provides an opportunity for registration of the national quality indicators developed in conjunction with the Swedish Board of Health and Welfare’s national guidelines for breast cancer.
Inclusion criteria: Primary breast cancer C50*. The first incidence of breast cancer on each side is included. Women and men. All ages. Invasive and in situ breast cancer.
Exclusion criteria: Post-mortem-detected cases. Phyllodes tumour, sarcoma and lymphoma. Patients with protected identities. Patients who do not want to be included in the registry. Patients with temporary non-resident patient numbers.
Diagnosis year 2008-2012: approx. 40 000 cases.
Diagnosis year 2011: 8 363 cases.
Coverage rate for reporting of primary diagnosis in 2011: 96-99 percent depending on region.
Region South has conducted a validation study of reported data. Region North is planning a validation study.
Note: Variable lists are updated on a regular basis and should therefore be seen as preliminary. For the latest version, please contact the registry.
Certification level: 1
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