SWEDCON, the National Quality Registry for Congenital Heart Disease, is an amalgamation of the former GUCH registry for adults with congenital heart defects, local paediatric cardiology registries and the amalgamation of the former GUCH registry for adults with congenital heart defects and local paediatric cardiology registries. A paediatric heart surgery portion and a foetal portion are also included. The registry has the aim of monitoring patients with congenital heart disease from before birth through their entire lives. It also includes information on performed surgeries and catheter interventions.
The registry aims to include all children with congenital heart disease in the country and the adult patients with congenital heart disease who visited any of the country’s GUCH (Grown-up Congenital Heart Disease) clinics. The foetal portion of the registry is still under construction.
At the end of 2014, there were a total of 44,890 patients in the registry, of which 24,765 are aged 0-18.
In 2014, new registrations totalled 2901 children and 918 adults.
Calculated as the percentage of registered units out of total possible: Children 90 percent, GUCH 84 percent, Surgery 100 percent.
Note: Variable lists are updated on a regular basis and should therefore be seen as preliminary. For the latest version, please contact the registry.
Category: Circulatory system
Certification level: 2
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