2 April 2016

National Quality Registry for Dependency (SBR)

  • Registry Manager: Stockholm Health Services
  • Registry Centre - affiliation: Registry Centre VGR
  • Start year: 2009
  • Classifications used: ICD10
  • This registry contains data on: Diagnoses, Inpatient Care, Specialized Outpatient Care, Socio-economics, Follow-up Data 12 months or later after the case is registered in the registry

Description of registry

Dependency disorders are one of our most widespread public health problems. There are 780,000 people in Sweden today who abuse or are dependent on alcohol, 80,000 who abuse narcotics, and 65,000 who misuse pharmaceuticals.

It is estimated that at least 2,000 people in Sweden die every year from alcohol abuse and 400 from drug abuse. These figures become significantly higher if you also include accidents, suicide and other medical conditions related to substance abuse. The care needs of this patient group are often complex, with both psychiatric and somatic co-morbidity.

National guidelines have been in place for substance abuse and dependency since 2007. Despite this, there is reason to believe that healthcare interventions vary significantly nationwide.

Objectives of the registry:

  • Monitor the progression of patients through healthcare interventions/continuums of care and describe the relationship between interventions and outcome.
  • Comparisons within and between care units, organisations and continuums of care.
  • Study the effects of specific and coordinated interventions for people with complex care needs and/or co-morbidity.
  • Compile data for decision makers.
  • Data for evaluation and research.

The Swedish Dependency Register compiles information on diagnoses, GAF, AUDIT, DUDIT, as well as data for the KiM Registry (care history, alcohol and drug consumption and psychosocial situation). This provides a comprehensive and comparative picture of abuse patterns, diagnoses, backgrounds, functional abilities and interventions/treatments at county, regional and national levels.

Population

The Swedish Dependency Registry registers patients treated in specialised substance abuse and dependency care in county healthcare institutions. The patients’ continuum of care often also includes primary care and social services. It is the ambition of the Dependency Registry to also include these important components of the patients’ actual continuum of care in future in order to provide a foundation for quality improvements throughout substance abuse and dependency care.

Ages in the registry

Over age 18.

Total volume of registry

As of 31 August 2012, there were 5,997 new registrations in the Dependency Registry.

Volume over the past operating year

As of 31 August 2012, there were 2,341 new registrations made in 2012.

Coverage rate

Because substance abuse and dependency patients are usually found in other areas of care (including social services) apart from specialised county hospital care, because this is also not uniformly organised in the country, and because no records are reliable for this patient group, it is difficult to accurately estimate patients relevant for registration in the Dependency Registry.

According to the Dependency Registry’s own estimate, there are about 40,000 patients in about 100 care units, but the Registry hopes to be able to provide more accurate figures in future. There are currently 41 units affiliated with the Dependency Registry, which according to this estimate would provide a coverage rate of 41 percent.

The Dependency Registry does not yet have any coverage rate data from registered units, but has conducted a pilot survey in Dalarna, where the coverage rate was 262 of 561 patients, representing a coverage rate of 47 percent.

Note: Variable lists are updated on a regular basis and should therefore be seen as preliminary. For the latest version, please contact the registry.

Category: Psychiatry

Certification level: 3

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