Eating disorders are common, serious, and a growing health problem among teenagers and young adults. It is estimated that 75,000-100,000 teenage girls and young women in Sweden suffer from eating disorders. The disorder is also observed among boys and men, and younger and older women. The costs of eating disorders are great, in terms of both personal suffering and health economics. Mortality is high, surpassed by only a few other psychiatric conditions.
Clinical guidelines and consensus emphasise the importance of increasing our knowledge of progression, outcome, prognosis and treatment of the disorders. There is little experience in psychiatry of systematic monitoring and quality development. Continued work with RIKSÄT is very important for both the long-term development of treatment for eating disorders in the country, and to provide pioneering work for quality registration in psychiatry – this latter with reference to the future inclusion of structured assessment support in the registry.
The registry aims to:
For inclusion, both of the following criteria must be met: diagnosed eating disorder and intention of treatment (for the eating disorder) by the treatment facility in question. The long-term aim is to include all levels of care, but RIKSÄT is currently a treatment registry and it is unclear which levels of care in different county councils offer treatment for eating disorders. The population of existing cases in the populace is estimated at about 100,000 persons. Many people, however, do not seek or do not receive care, and the number of persons who can be included is therefore probably less.
All ages. Existing patients are between the ages of about 7-70.
The number of initially registered treatments in October 2012 was 16,608.
In 2011, new registrations totalled 2339. In 2012, this is expected to increase by more than 10 percent.
The number of patients registered with eating disorder specialist clinics is about 90 percent. The number of clinics who have responsibility for treating eating disorders is unknown because we do not know how many actually carry out treatment.
Note: Variable lists are updated on a regular basis and should therefore be seen as preliminary. For the latest version, please contact the registry.
Certification level: 3
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