The National Quality Registry for Kidney Cancer was started in 2004 and has had nationwide coverage since 2005. The collection of data on patients who develop kidney cancer is highly significant to the understanding of the tumour disease in a large patient population.
Purpose and objectives:
Registration can be expected to result in more effective diagnosis, quality improvement measures and more standardised management of patients with kidney cancer.
The national kidney cancer registry includes diagnosis data only from the primary tumour and not from metastases. The National Quality Registry for Kidney Cancer registry covers all patients with newly diagnosed kidney cancer. Data concerning diagnostics and primary treatment are registered. Follow-up is carried out on survival.
Note: Variable lists are updated on a regular basis and should therefore be seen as preliminary. For the latest version, please contact the registry.
Certification level: 2
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