National Quality Registry for Lung Cancer

• Registry Manager:
• Registry Centre - affiliation: Regional Cancer Centre Uppsala
• Start year: 2002
• Classifications used: ICD-10, SNOMED
• This registry contains information on: Diagnostic procedures, staging methods, stage at diagnosis, histopathology, smoking history, performance status, planned treatment, 1-year follow-up status, EORTC QLQ-C30 quality of life questionnaire

Description of registry

Every year, over 3000 individuals develop lung cancer in Sweden. The purpose of the National Quality Registry for Lung Cancer is to provide information on diagnostic procedures, staging methods, tumour characteristics, planned treatment, study participation and follow-up. The register provides data for quality monitoring of the management of lung cancer patients, and for research studies.

Population

All cases of invasive primary lung cancer, except autopsy-detected cases.

Ages

All ages

Volume

Registered cases 2002-2015: 47.200

Completeness

2008-2014: 95 % of cases compared to the Swedish Cancer Register.

Note: Variable lists are updated on a regular basis and should therefore be seen as preliminary. For the latest version, please contact the registry.