2 April 2016

National Quality Registry for Malignant Melanoma

  • Registry Manager: Östergötland County Council
  • Registry Centre - affiliation: Regional Cancer Centre South East
  • Start year: 2003
  • Classifications used: ICD10
  • This registry contains data on: Diagnoses, Interventions, Primary Care, Inpatient Care

Description of registry

Malignant melanoma is the sixth most common of all tumours. Melanoma is caused by harmful ultraviolet radiation. Increased travel (beach holidays) and tanning bed use has caused an increase in the disease. In 2010, there were 2,817 invasive melanomas diagnosed in Sweden. Age-adjusted incidence was 31.9/100,000 among men and 2.6/100,000 among women. The total incidence increase was 4.4 percent.

In 2010, 470 people died due to melanoma, of which half were over age 75.

Early diagnosis with a high proportion of thin melanomas provides a relative five-year survival rate of 93 percent for women and 86 percent for men. Informing the population about melanoma facilitates early diagnosis and improved sun and tanning bed habits should be able to halt the increase rate for the disease.

Purpose and objectives:

  • to supplement cancer registration with tumour-specific factors, stage and data on surgical treatment
  • to maintain a national database as a basis for planning of studies
  • to enable monitoring national developments and to make global comparisons of prevalence, incidence and survival
  • to provide the opportunity for individual clinics to run comparisons with county, regional and national data and practices
  • to provide regular reports to care providers
  • to describe the continuum of care with the help of quality indicators

Population

All persons diagnosed with invasive melanoma are registered via the INCA portal. For research purposes, in situ melanoma is also registered within Region Västra Götaland and Region Stockholm-Gotland. In other regions, data on in situ melanoma is retrieved via the Swedish Cancer Registry.

Ages in the registry

All ages.

Total volume of registry

The inclusion rate is above 95 percent most years. At present, there are about 50,000 cases preliminarily registered from 1990 (or the year the specific registry began) onward.

Volume over the past operating year

2,964.

Coverage rate

The coverage rate is the number of cases of melanoma in the registry/number of cases in the quality registry. In 2011, the coverage rate was estimated at 95 percent.

References on validations

Validation is only done in conjunction with registration.

Note: Variable lists are updated on a regular basis and should therefore be seen as preliminary. For the latest version, please contact the registry.

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