2 April 2016

National Quality Registry for Neonatal Care (SNQ)

  • Registry Manager: Västerbotten County Council
  • Registry Centre - affiliation: Registry Centre North, RCN
  • Start year: 2001
  • Classifications used: ICD 10, KVÅ
  • This registry contains information on: Newborn infants admitted to neonatal care units at birth

Description of registry

The Swedish Neonatal Quality Register (SNQ) collects information on all newborn infants that are admitted to any of the countries 37 neonatal units. Approximately one in ten infants are admitted to a neonatal ward at birth due to the need for extra help and care. For the majority, this care is short-term; the child receives assistance in coping with the major transition of birth and may then be discharged home. For a smaller group of children, however, the care needs are considerably greater, and for some children – such as those born very preterm, or with complex congenital conditions – several months of advanced intensive care may be needed.

SNQ also contains three ancillary registries that focus on specific problem areas in neonatal care.

  • SWEDROP contains information on extremely premature children who are examined for retinopathy. This information describes the extent of retinal changes and the treatment provided.
  • SNQ Transport contains detailed information on children who need to be transported between care units.
  • SNQ Follow-up contains structured, interdisciplinary information on the psychomotor development of children with particularly complex conditions during the neonatal period, where there can be an increased risk for future disability.

The goal of the registry is to act as an instrument for improved care of newborn infants. The information contained in SNQ forms an important foundation for the quality improvement work that is continuously carried out in national neonatal care. The information in the registry also illustrates how care interventions, treatment methods and procedures vary across the country, and how these variations affect the results of care and the children’s future health.

Population

The Swedish Neonatal Quality Registry, SNQ, registers all children who have been admitted to a neonatal intensive-care unit (NICU) within 28 days after birth. The registry is thus not limited to a specific diagnosis or diagnosis area, but rather by the age of the child and the very special phase of life that the neonatal period represents.

Total volume of registry

About 140,000 admissions in total and about 14,000 new admissions per year.Note: Variable lists are updated on a regular basis and should therefore be seen as preliminary. For the latest version, please contact the registry.

Category: Paediatrics, obstetrics and gynaecology

Certification level: 2

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