National Quality Registry for Behavioural and Psychological Symptoms of Dementia (BPSD)

• Registry Manager: Region Skåne
• Registry Centre - affiliation: Registry Centre South
• Start year: 2010
• Classifications used: ICD10, ATC (pharmaceuticals)
• This registry contains data on: Pharmaceuticals, Diagnoses, Interventions, Follow-up Data 3-5 months after the case is registered in the registry, Follow-up Data 6-11 months after the case is registered in the registry, Follow-up Data 12 months or later after the case is registered in the registry
  

Description of registry

Dementia is one of the most widespread diseases in the world, with numerous and varied consequences for the individual and his or her family, and for society at large. In addition to impaired cognitive functions such as memory, spatial orientation, language skills and thinking capacity, dementia can also cause behavioural and psychological symptoms (BPSD). These can express themselves as, for example, anxiety, agitation, aggressiveness, wandering, depression or hallucinations. BPSD is one of the most common factors behind an individual requiring special housing and is also a common reason for the prescription of medication and for polypharmacy. The objective of the BPSD registry is to ensure the quality of nursing care for people with dementia and to achieve nationwide equality in the care and treatment of this patient category. The registry has a clear structure and is based on charting the frequency and severity of BPSD, identifying potential causes of BPSD and recording pharmaceuticals.
Then, teambased nursing interventions to reduce the prevalence of BPSD, are detected.

Population

There are currently approximately 150,000 individuals with dementia in Sweden. Many of these have not been diagnosed. About 90 percent of these people will suffer from BPSD during the course of the illness. The farther the condition has progressed, the higher the prevalence of BPSD. Consequently, the registry is primarily used by nursing homes and other special housing facilities, but also to some extent by home care and local dementia care teams.

Ages in the registry

All ages.

Total volume of registry

Since the registry was started, 69 013 individuals have been registered, and there have been a total of 211 963 registrations (June 10th, 2019).

Coverage rate

There are affiliated units, both private and public care providers, in 289 municipalities. It is difficult to set a figure for coverage rate on the patient level, as many people with dementia have not been diagnosed.

Note: Variable lists are updated on a regular basis and should therefore be seen as preliminary. For the latest version, please contact the registry.