National Quality Registry for Child Preventative Health (BHVQ)

• Registry Manager: Östergötland County Council
• Registry Centre - affiliation: Registry Centre SydOst, RCSO
• Start year: 2013
• Classifications used: ATC, Snowmed CT
• This registry contains data on: Interventions, Primary care, Risk Factors, Follow-up Data 3-5 months after the case is registered in the registry, Follow-up Data 6-11 months after the case is registered in the registry, Follow-up Data 12 months or later after the case is registered in the registry

Description of registry

The aims of the Swedish Child Preventative Health Registry, BHVQ, include:

• maintain and develop the quality of current paediatric preventative healthcare
• monitor the coverage rate in Swedish paediatric preventative healthcare services based on the principle of the right of all children to healthcare and the right of all children and parents to education on paediatric preventative healthcare
• enable healthcare providers to evaluate their own organisations
• perform nationwide comparisons
• describe activities using tangible measurements for the political control process

The registry will provide a basis for continuous quality improvements in paediatric preventative healthcare. In the future, BHVQ may be able to follow the development of the health status of children nationally, regionally and locally, and to measure the parents’ and children’s perception of paediatric preventative healthcare services using PREM data.

Population

All children registered in the national population registry, aged 0-5 years, in Sweden. The registry also registers children with temporary non-resident patient numbers, children without papers, and hidden children who come to the knowledge of paediatric healthcare services.

Ages in the registry

0-5 years of age.

Total volume of registry

When the registry is fully developed, it will comprise 500,000 children. A new cohort of 100,000 children is added each year.

Volume over the past operating year

0.

Coverage rate

The registry is in a construction phase and no real data collection has yet been performed. It is thus not possible at the present time to measure coverage rate. A fully developed BHVQ will comprise all paediatric preventative healthcare services in the country, i.e. will have 100 percent coverage.

References on validations

The registry retrieves data through automatic transfer from the preventative child healthcare records. Functionality regarding this will be described in quality studies. External data dropout will be controlled through correlation with the Swedish population register. Birth data is matched against the National Board of Health and Welfare’s Medical Birth Register (MFR).

Note: Variable lists are updated on a regular basis and should therefore be seen as preliminary. For the latest version, please contact the registry.