National Quality Registry for Cystic Fibrosis

• Register Manager: Region Östergötland
• Registry Centre - affiliation: Registry Centre SydOst, RCSO
• Start year: 2012 (1992)
• Classifications used: ICD10
• This registry contains data on:

Description of registry

Cystic fibrosis (CF) is the most common fatal recessive hereditary disease. It is characterized by abnormally high chloride and sodium levels in the sweat and generally thick phlegm, with symptoms particularly in the lungs and gastrointestinal tract. Since its start in 1992, the objective of the CF Registry has been to conduct long-term monitoring of all CF patients in Sweden in order to optimise care and thus improve survival.

Note: Variable lists are updated on a regular basis and should therefore be seen as preliminary. For the latest version, please contact the registry.