National Quality Registry for Kidney Cancer

• Registry Manager:
• Registry Centre - affiliation: Regional Cancer Centre Stockholm Gotland
• Start year: 2004
• Classifications used:
• This registry contains information on:

Description of registry

The National Quality Registry for Kidney Cancer was started in 2004 and has had nationwide coverage since 2005. The collection of data on patients who develop kidney cancer is highly significant to the understanding of the tumour disease in a large patient population.

Purpose and objectives:

• Create consistently good management and treatment for kidney cancer patients across the country.
• Provide information on the incidence of the disease, tumour stage distribution, morphology, treatment patterns, and changes over time.
• Follow up on the objectives set out in the national care programme for kidney cancer.

Registration can be expected to result in more effective diagnosis, quality improvement measures and more standardised management of patients with kidney cancer.

Population

The national kidney cancer registry includes diagnosis data only from the primary tumour and not from metastases. The National Quality Registry for Kidney Cancer registry covers all patients with newly diagnosed kidney cancer. Data concerning diagnostics and primary treatment are registered. Follow-up is carried out on survival.

• Inclusion criteria: All patients with newly diagnosed kidney cancer.
• Exclusion criteria: Tumours discovered during autopsy. Suspected tumours, oncocytomas, sarcomas or Wilms’ tumour.

Ages in the registry

All ages.

Note: Variable lists are updated on a regular basis and should therefore be seen as preliminary. For the latest version, please contact the registry.