National Quality Registry for Liver, Bile Duct and Gallbladder Cancer (SweLiv)

• Registry Manager: Region Västra Götaland
• Registry Centre - affiliation: Regional Cancer Centre West
• Start year: 2009
• Classifications used: KVÅ, ICD10
• This registry contains data on: Diagnoses, Interventions, Inpatient Care

Description of registry

Aims:

• To register tumours, tumour progression and underlying factors for primary tumours of the liver, gallbladder and bile ducts.
• To register scope and content of anti-tumour therapy for tumours of the liver, gallbladder and bile ducts, regardless of primary tumour, when local or regional treatment becomes relevant.
• To register the surgical and intervention procedures performed and complications related to these.

The quality indicators contain

…process indicators such as:

• lead time indicators (time from detection and referral to treatment decision and treatment)
• percentage assessed at hepatobiliary treatment conference

…results such as:

• survival with respect to stage and treatment

Population

The registry aims to include all patients who develop primary malignancy of the liver, gallbladder or bile ducts. The registry is also an intervention registry for surgical or ablative treatment of secondary malignancy of the liver. Length of hospitalisation for inpatient care interventions is registered, but not outpatient contacts.

Registration is done using a registration form, a tumour intervention form and a complications/PAD form. The incidence of primary malignancy is less than 1000 persons/year, as is the number receiving surgical interventions for malignancy of the liver.

Ages in the registry

Age 16 and up.

Total volume of registry

The registry contains more than 10,000 registration forms, more than 5000 tumour intervention forms, and more than 5000 complications/PAD forms.

Volume over the past operating year

For the 2014 operating year (as of September 2015), 1500 registration forms, 1000 tumour intervention forms, and 850 complications/PAD forms have been reported.

Coverage rate

Coverage rate is calculated against the Cancer Registry for primary malignancies (ICD-O-3: C22.0,C22.1,C23.9). Coverage rate according to check control in Sept 2015: 2009-2014 91 percent.

Note: Variable lists are updated on a regular basis and should therefore be seen as preliminary. For the latest version, please contact the registry.