National Quality Registry for Renal Failure (SNR/SRR)

• Registry Manager: Jönköping County Council
• Registry Centre - affiliation: None
• Start year: 2007
• Classifications used: KVÅ, ICD10, ATC (pharmaceuticals)
• This registry contains data on: Pharmaceuticals, Diagnoses, Interventions, Inpatient Care, Specialised Outpatient Care, Follow-up Data 3-5 months after the case is registered in the registry, Follow-up Data 6-11 months after the case is registered in the registry, Follow-up Data 12 months or later after the case is registered in the registry

Description of registry

SNR is a web-based quality registry for patients with chronic kidney failure (CKD) in Sweden and kidney function of less than 30 percent of normal kidney function (CKD 4+5). The aim is to monitor the development of the cause of CKD and the need for renal replacement therapy (RRT). Central components of the care and treatment of CKD and RRT are also measured, evaluated and monitored.

Population

One-third of patients with chronic kidney disease in CKD 4+5 (currently 8 800 patients) are currently undergoing renal replacement therapy (RRT), i.e. receive regular dialysis treatment (3 900) or have a transplanted kidney (5 000).
Among the remaining 18 000 patients with CKD 4+5, 9 000 are estimated to be known by healthcare services, and 65 percent of these are registered in SNR.

The coverage rate for RRT patients is nearly 100 percent.

Ages in the registry

All ages.

Total volume of registry

More than 30 000 patients have been registered since the predecessor to SNR, SRAU, was started in 1991. Complete epidemiological data for patients in renal replacement therapy has thus been compiled since 1991.

Volume over the past operating year

8 800 patients in renal replacement therapy. 8 752 registered (living) patients with chronic kidney failure (CKD phase). (5526 patients in CKD 4+5, but not in RRT). 23 477 registrations in 2011.

Coverage rate

More than 97 percent for kidney transplant patients. More than 95 percent for dialysis patients. More than 60 percent for patients in CDK 4+5. More than 65 percent of all vascular accesses among haemodialysis patients.