National Quality Registry for Spine Surgery (SWESPINE)

• Registry Manager: Jönköping County Council
• Registry Centre - affiliation: Registry Centre South East, RCSO
• Start year: 1993
• Classifications used: KVÅ, ICD10
• This registry contains data on: Diagnoses, Interventions, Inpatient Care, PROM and PREM and other patient-reported data, Follow-up Data 1-2-5-10 years after the patient is operated/registered in the registry

Description of registry

Overall aim: to register patient-reported results after all spine surgery procedures performed in Sweden. The register, which was started in 1993 and went online in 2002, is managed by a steering committee under the Swedish Society of Spinal Surgeons: http://www.4s.nu.

All surgical conditions of the spine can be registered, as well as all types of surgical procedures, except for fractures, which was transferred to the Fracture Registry in 2015. Basic demographic data is registered, and most results are then based on patient-reported data (PROM and PREM) concerning e.g. pain, function, quality of life, working situation and expectations after 1,2,5 and 10 years.

Clinics reporting to the registry have continuous access to their results online, and can compare their results with all registered clinics in the country as well as with national mean figures. The public can follow analysed and described clinical comparisons online at: http://www.4s.nu/Kopia_av_patientsida/index.html

Population

All surgical spine surgery procedures for all diagnosis groups except fractures are included.

Ages in the registry

All ages.

Volume over the past operating year

About 10,000 patients per year.

Coverage rate

About 80 percent.

Note: Variable lists are updated on a regular basis and should therefore be seen as preliminary. For the latest version, please contact the registry.